I don't have normal cytogenics, so maybe this is why my doctor doesn't believe this is autoimmune related. It's just weird that all these symptoms started up when my platelet count began dropping again. I told my husband I feel like my body is under attack. I may be grasping at straws, but I am determined to find a reason why I developed MDS so young.
Thanks for the response. I wish you all the best too! I have been scheduled to begin pre-transplant testing twice now and then my counts stabilized and the transplant was put on hold. Luckily I have five unrelated matches when the time does come.
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58
, IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)