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Oh geez, I'm sorry to hear that, Lee! What a shock!
I wonder if it's worth having your BMB samples sent to yet another haematologist for a second (err, fifth?) opinion? It sounds like you've had every diagnosis under the sun and no consensus. Is there an MDS centre of excellence near you?
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
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