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Your head must be spinning from all this!!!
I think it's a good suggestion to get another set of eye on this also. Can you get to NIH or Johns Hopkins? I don't know if I could trust any one doctor's opinion at this point. You need some collaboration with the experts on this to get a definitive diagnosis.
Pretty much all immuno-supressant meds like ATG, Cyclo, Cytoxan, etc can cause secondary clonal disease like leukemia or lymphoma. These usually don't show up right away though.
Keep pushing for clarity because you want to make sure you get the proper treatment.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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