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Dear Dave, I am very sorry to hear of your relapse. Have you been on CSA since treatment or just restarted after the relapse? If restarted, how long did you take the CSA originally? Did you experience elevated CK values while on the initial high CSA dose they usually give right after ATG treatment? My daughter was treated at the same time as you were. Although I know that relapse can happen any time, hearing about it at two plus years out is hard since we were told that the majority of relapses happen within the first couple of years.
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