Platelets dropped from 229,000 to 97,000 in 7 weeks
I'm am new to this forum and am desperate for reassurance or guidance with my son who has SAA in remission. One month after being completely off the cyclosporine, his platelets were at 229,000 (December 27, 2009). He has been steadily loosing platelets ever since and on February 16, 2010 is at 97,000. His doctor's keep telling me "everything looks good," and that there would be no concern until there is a trend. In my mind this is at trendful as it gets. His Hgb has been hovering in the 9-low 11's since diagnosis, white count also 3-5's since diagnosis. Am I overreacting and the doctor's are under-reacting?? Starting to notice more bruising, bleeding gums, but told we don't need to check bloodwork more than every 3-4 weeks. Thank-you for any insight someone can give me!!!
Tami
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Tami, mother of Samuel age 8, diagnosed SAA at age 7 in January 2009, treated with ATG in February 2009, 6 months cyclosporine plus 4 months tapering; now med free with falling platelets.
Last edited by Tami : Tue Mar 2, 2010 at 11:16 AM.
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