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Old Thu Mar 4, 2010, 07:35 PM
tytd tytd is offline
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Join Date: Jul 2009
Location: Southeast, USA
Posts: 132
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Hello Kirby,
I am very glad that your blasts are down and counts are up. Looks like you have found a winning combination! Thanks so much for posting and giving hope to Birgitta and I and others about the possibility that Promacta may be an option if needed in the future. It is also good to know that it hasn't increased your blasts as reported in some MDS patients who took the other platelet drug, Nplate. I checked into a clinical trial posted at NIH about using Promacta in low risk MDS but they said they haven't registered patients yet since they are having problems getting the drug for the study. I'm still hanging with "Watch and wait" for now. I wish you continued good luck. Thanks tytd.
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possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode
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