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John's first BMB wasn't conclusive either. We were pretty sure that it wasn't leukemia but he had to have another BMB. We went to Johns Hopkin to see Dr. Brodsky. He told us you need the BMB to get a final diagnosis in order to treat effectively.
John was diagnosed with SAA after they rule out all other possibilities like cancer, MDS, genetic anemia's, etc. So it is important to know what is going on in the BM. SAA is diagnosed by eliminating all other causes. From what I understand, MDS is not and there are multiple types/classes of MDS that need to understood by the docs.
There are others on this site with lots of knowledge on diagnosing MDS who will most likely post on this.
I urge you pursue a solid diagnosis before starting any treatment.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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