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MDs starting revlimid- Side-effects
Just a few points to watch. You need to be monitored weekly via blood tests. Your neutrophils may drop suddenly causing a risk of unexplained infection. This happened within a month with my husband. After a short hospital stay with antibiotics and a two week wait for the neuts to rise, he started again but only with a 5 mg dose. Everyone is different with their response. It worked after four months and he was Tx free for 5 months.
Yes you will be very fatigued and rest a lot but the improvement was like a switch going on. It can resverse the 5q- but did not happen with David.
they tried the higher dose but it made him worse but the good news is that a over a tesr later he has longer time between Txs, now over three weeks.
Good luck and be patient. It is like chemo so take care.
Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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