Quote:
Originally Posted by jacqueline
I wish we has been more pro-active when she was first diagnosed. She was at her peak, physically then - an avid rambler and regular at the gym/pool, but her consultant advised transfusion maintanencae and iron chelation, which, up until recently, has worked well
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The fact that transfusions and chelation worked well for years means that it was a reasonable choice 6 years ago, especially when mini-transplants hadn't been studied as much and recommended as often. Without a crystal ball it's rare to have absolute certainty about the choice among treatments, so we and our doctors rely on the information available at the time.
You might want to follow the
How did you decide if/when for the BMT? thread for more views from patients.
Your mother's regular exercise over the years put her at an advantage, and it probably still applies. Good luck!