Vidaza
Hi King Farouk,
You are right about my treatment - since I am very afraid of adverse effects I only accept supportive treatment. I had severe marrow fibrosis from dx May 2006 (I had probably had MDS for years) and I don't think my bone marrow could tolerate Vidaza. As a matter of fact Vidaza is only approved for high risk MDS in the EU and I still have MDS Interm-1.
Stem cell transplantation has never been an option for me because I was 67 yo at dx and as far as I understand low age is a very important factor for a good result.
I am still asymptomatic and I am thankful for every day i can continue with transfusions, Desferal, Exjade and Neupogen. Even if my life won't be much longer I prefer high quality of life.
You know nobody really knows how Vidaza should be dosed according to my doctor who is a specialist in Vidaza treatment in MDS patients. It is common to evaluate the result after 6 cycles. Perhaps it is better to try another drug after 6 months if the blasts have increased and counts decreased. It is probably not possible to know the reason for the increased blast cells.
Thank you for offer about help - I am very interested in your contacts with GSK about Promacta/Revolade.
Kind regards
Birgitta-A
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