[Chirley]

Thanks Birgitta and Helen.

I don't understand why the pathologist and haematologist said I had RCMD whereas it's obvious I have RCMD RS. Maybe the WHO classification is a little unfamiliar to them. I haven't done a lot of research today because I find I need a break from thinking about it.

My doctor told me about the compassionate grant from the drug company for Vidaza BUT you have to have paid for the first 6 cycles and responded well and then they might grant free Vidaza thereafter. I have contacted my health fund and they said they would consider paying the entire cost if my doctor writes to them and explains why this drug is the drug of choice. I have also contacted my Federal MP and I was told they could make an application for provision of Vidaza on compassionate grounds as well. It turns out Vidaza has been recommended for approval for the PBS they are just finalising the complexities of authority approvals etc. It has only been approved for MDS Int 2 and worse.

I wasn't told about the cut off age for a BMT but maybe this is why he is starting the process so quickly. I turn 54 next month. BMT definitely is not my preferred option.

Helen have you had a lot to do with the Leukaemia Foudation? Do you know if they organise conferences and things? I don't feel I need their emotional or physical support at the moment but it would be nice to know they were there if I needed them.


Birgitta, yes, we pay very high taxes and we do receive good services in return but we have a small population and therefore a small tax base. Our health system is constantly in the news for it's ineptitude and underresourcing. There maybe changes on the way. I, personally have not had any major problems with the system but I see where it could be better.

I have always been a procrastinator. I love procrastinating. I was feeling stressed once and I attended a psychologist and I told her that I procrastinated, she just laughed and said that we would work on that. We never did. But, I think the time for procrastination has gone and I have to make some decisions.

Once again thanks for the replies.