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Hi,
It is my understanding, there isn't much difference between RCMD and RCMD-RS for treatment etc.
I have RCMD with severe fibrosis, however I am still responding to the VPA with no side effects and my HGL has climbed again into the 130's. 21 months transfusion independant, which is amazing.
A few weeks ago, we thought the VPA was starting not to work and when I spoke to my MDS specialist about were we go now, he wanted to seriously consider Revlimid or ATG as the next course of treatment and before my hemoglobins dropped to where I needed transfusions again. I asked him about Vidaza and he said no, not at this point because he wanted a drug available in the future if we need it, especially when I get worse and if other treatments fail.
We also haven't had the talk yet about the big T, hopefully that isn't something I have to consider for years if at all.
Good luck, I hope they figure out what you need and you have an excellent response!
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