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Old Fri May 7, 2010, 10:56 AM
Ray V Ray V is offline
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Join Date: May 2010
Location: Nashua, NH
Posts: 6
Birgitta-A,

Yes I think so.

But there might also be another issue here. If many have MDS and are not diagnosed and survive for many years without any treatment, could the current methodology be flawed to the point where it might not be helping those who are under treatment to the degree it ought?

There are a lot of doctors that live in my community and many tell me that they have hoards of older patients who present with mild anemia and leukopenia for decades. I have for 5 years now and it was only my insistence on "getting to the bottom of this" that had me undergo a series of tests thought otherwise unnecessary by both my GP and my consulting hematologist/oncologist at a major Cancer center. I am otherwise asymptomatic and have had two bone marrow tests with differing results as to the type and degree of MDS and recommended treatments of choice. I will repeat a bone marrow test next month and compare it's results with the other two.
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