Hi Ray,
I agree with you about our knowledge about treatment from patients with serious symptoms but actually many patients are told to wait and control the counts for years.
Other patients with symptoms agree to treatment that only have had positive effects for less than 30% of the patients. That is very brave but I should never try a drug that will give more than 70% of the patients adverse reaction and no positive effects.
As you perhaps have read I only accept supportive therapy (RBCs, Desferal, Exjade and Neupogen) because I prefer living asymptomatic as I do now but I am 71 yo. The situation is very different for younger persons.
Hope your counts will be OK for a very long time
!
Kind regards
Birgitta-A