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Old Wed Jun 23, 2010, 12:51 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Flyguy,

I also had a lackluster response at 6 months post-ATG. My doctors also had me double my cyclosporine dosage at the time, which made me really ill with no benefit. I decreased my dosage after a month and ironically, at 8 months post-ATG, my counts finally started to rise...slowly. So, don't give up hope yet. If you are transfusion independent, you've had some kind of response. Your marrow can start to recover at anytime.

Because of the risks of infection associated with ATG or ALG (not to mention the risks of bone death with prednisone), my doctors didn't advise this approach while I was transfusion independent.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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