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Old Thu Jun 24, 2010, 10:21 AM
Gloria J Gloria J is offline
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Join Date: Sep 2009
Location: New Jersey
Posts: 53
Hi FlyGuy,

Just wanted to chime in - give the ATG some more time - it took me almost fifteen months before I was transfusion independent after the ATG. Two years post-ATG, my platelets are in the 50s, Hgb in the 11-12 range, and white cells bounce between the 2s and 4s. Not amazing counts, but amazing enough for me.

It's so frustrating when your counts don't bounce back, but I can see from the posts here that not everyone responds so quickly. At six months past-ATG, I was still being transfused every four-five weeks, but by the one-year mark, it was down to every two months.

Unless your counts are trending downward, give it some more time.

Good luck!
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Gloria, early 50s, dx SAA Summer 2007, Pred July 07, Rituxan Aug 07, dx PNH Feb 2008, ATG Apr 08, began Soliris 5/31/11
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