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Old Sat Jun 26, 2010, 04:42 PM
marieostrom marieostrom is offline
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Join Date: May 2010
Location: California
Posts: 7
Pic Line and Dacogen

Roger,
I had a pic line for about 8 months and had the same problem keeping it dry. Hopefully your nurses are using Tegaderm over the actual entry point. For showering I usually used the sleeve that my daily newspaper came in with a lot of waterproof tape. It was sometimes more trouble getting it off than getting it on. During the day I would keep it covered with the top of an old sock which fit my arm pretty well and kept the end of the pic from snagging on anything as well as keeping it clean.
I did have a problem after 8 months when I developed an infection and blood clots somewhere along the line. It was removed and I now have a Power Port implanted in my chest which has given me no trouble after two years.

I was diagnosed MDS/AML in July 2007 and had 12 months of Dacogen (five days every 4 weeks) with very few side effects. I achieved remission and was off treatment for 15 months when I began to relapse. Started Dacogen again Feb. this year and have had 4 treatment cycles. This time around my counts are not recovering as quickly and the fatigue was much worse so my doctor and I are looking at the possibility of longer periods between cycles or lower dose. I see her again next week.

I have been very satisified with the Dacogen and hope your results are as good.
__________________
68 year old female diagnosed July 07 MDS/AML. Treated with Dacogen 12 cycles. In remission 15 months. Relapsed Dec 09 back on Dacogen. Would like to hear others experience with Dacogen.
Radiation for Breast cancer in 2001 may have led to MDS.
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