[anne&dean]

Thank you all for your post, it helps alot to have someone that knows more of what you are talking about.
The night nurse gave Dean to units of blood and let it run for 7 hours, usually they give it to him in 3hrs, this was Monday nite, so they were unable to do his blood test until late. His platelets, are going down again, but his blood was not as bad to need any. He ended up getting 2 units of platelets last I had talked to the nurse at about 9 pm last nite. But his liquid bowel movement measured out the same as it had been after I got there yesterday morning, it was real discourageing.
His doctor says he thinks he is improving, I tend to disagree, maybe because I as seeing him more than the doctor does and looking at the read outs of his blood test everytime they do them. His platelets got back down to 22 yesterday, and last nite they had made it to 24, they had said they wanted to keep them in the 30 range, then yesterday his dr. said the partial crossmatch they were using was hard to get. It really made me mad, I felt like they were not doing all they could. As Dean has no feeling in his bottom area due to their mess up over a year and a half ago, it is very embrassing for him when he messes the bed. That he one reason I try to stay at hospital 8 or 9 hours. I wish he would start trying to fight more but he just want. We have been dealing with this since 08 and I think the fight has gone out of him. I try to tell him funny things the grandkids have done, and how our cocker spaniel is stealing the tomatoes soon as they get half ripe. I will not talk to him about his dying, because I just can't. Now we are going on 3 weeks in the hospital and it is the longest he has ever been there. And where are his kids, they just come when I call and say that he is in worse shape, stay a couple of days then leave back to their happy life. They don't even call everyday. When this all started his daughter came down every time it was chemo week, now she is so tied up doing other things. All I ask for is for them to call him every day, and have told them so but it doesn't do any good. I understand they live 3 1/2 hrs. away, but sorry if it was my parent I would be here.Well thats enough of my ranting and raveing, kids are just different now days I guess, even though they are both in their 40's.
Hopefully today will be brighter, I am sitting here wanting to call the hospital and see what last nite was like but afraid to that there will be bad news.
I just called the nurse his platelets have gone back up to 30 at 2:30, his hematcrits are down to 23, but the dr. said not to give him any blood, not understanding this. His bowels had not moved any during the nite, so hopefully we are haveing a change again. The nurse just drew his blood again so by the time I get over there they will have a new reading.
Will keep you all posted, sorry I sounded out so, but it was good to get it out of my system.
Thank you for all your hopes and prayers.
anne