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Dacogen fatigue
Hi Susan,
I just noticed that you get 40mgs of Dacogen while I only get 20. No wonder you are fatigued!
I've actually been hoping the doctor would give me a lighter dose. But I have had good results and can't complain. I sure hope it works for you too. Try to rest as much as possible and ask for help if you need it. I went on disability when I was diagnosed at age 65 and now try to get by on Social Security and savings. At the time I was looking at standard treatment which would have been 4 to 6 weeks of hospitalization and a possible BMT but after a lot of thought decided to try the Dacogen instead. Never the less the doctor kept me on Disability because of the danger of infection and when I wanted to go back to work I found everyone was cutting back not hiring. I think it has been for the best as my life is pretty stress free these days.
You'r in my thoughts and prayers
Marie
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68 year old female diagnosed July 07 MDS/AML. Treated with Dacogen 12 cycles. In remission 15 months. Relapsed Dec 09 back on Dacogen. Would like to hear others experience with Dacogen.
Radiation for Breast cancer in 2001 may have led to MDS.
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