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Old Thu Jul 22, 2010, 08:52 PM
Lisa Z Lisa Z is offline
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Join Date: Nov 2008
Location: Ft. Washington, PA (Philadelphia area)
Posts: 111
Jenni-
Don't give up hope. Is there any way your doctors at home can contact the doctors at the NIH? (National Institutes of Health), in Bethesda, Maryland, USA? It is our country's largest research institute and they do lots of clinical trials. Perhaps your history would allow you to qualify for one.
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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