[jenni-fleur]

Thank you all so much for your kind replies and messages not to give up hope. Has been a hard couple of weeks with things moving quite fast in the wrong direction and referrals to palliative care etc. Kind of hard to get your head around things when your body just starts failing.

Lisa and Debbie: If I'm well enough to fly I'm going out to Texas to see if they can offer anything - nervous but I suppose kind of excited as don't really feel I have anything to lose at the moment.

Melissa: So lovely to hear from someone else in the UK and in a very similar position (well not lovely you have to go through this too, but I hope you understand what I meant!). Thank you so much for the encouragement not to give up hope, must admit I'm finding it hard. So glad to hear things have been pretty successful for you, hope you get to full recovery really soon!

tytd: Thank you for your advice and offer for details of other places too. My BM blasts are about 20% (last BMB 6 weeks ago though). Unfortunately my CSF blasts are also at 20% (1 week ago) and that is causing a lot of unpleasant symptoms. I haven't been able to go on Vidaza yet, but really hoping Texas might be able to get me started on it. Not sure if it's too late though now I've got into AML?

Thank you all so much for your encouragement and support, really appreciated.