Another newbie with MDS
I'm 41 and was just diagnosed with MDS. I was treated for non-Hodgkin's lymphoma in 2007 and life was going pretty good until a couple of months ago when I noticed new bruises, bleeding gums, and a really hard time breathing during my training runs (for a disastrous 5k in June that I could barely finish). I'm looking for people in my age group especially for support. I'm facing a stem cell transplant (but not 100% sure whether it would be BMT). I found out tonight my brother is not a match so I will need to search the national registry for a donor match. I'm also trying to figure out where to go for treatment as my NIH doctors don't do un-related transplants. I'm scared and overwhelmed by all of the decisions I'm facing and would appreciate any advice.
Thanks!
Angela
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Angela; diagnosed NHL April 2007 -treated w/6 cycles EPOCH; diagnosed MDS July 2010; currently looking for BMT match
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