I know just how you felt when your husband was given the diagnosis of MDS. My husband was diagnosed on June 30, 2009. We were told that he had from 4 months to unknown, we chose the unknown. He has been on a 28 day cycle of Vidaza and it seems to be doing what it is supposed to do. In the meantime, other problems have risen. I think they are contributed to by the MDS but congestive heart and pulmonary edema have kept us busy going to, not only the oncologist but a cardiologist, a primary care physician and a pulmonary doctor. We thank God for each and every one who are treating my husband. We are going through a rough spot at this time but don't count us out. I feel like MDS is a disease of all the family. Each one of us just have to do the very best we can to keep our loved ones' spirits up as well as our own. God bless all you Caregivers.
ann
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Originally Posted by Al's Wife
Angela,
Just wanted you to know that there are a lot of us who have felt that overwhelming OMG feeling when given the MDS diagnosis. My husband was diagnosed May 26th and I will never forget sitting in that doctor's office. Unlike you though, he is 73 and not able to have a transplant. I will pray that they will find a suitable match for you.
God bless you and keep us posted.
Linda
Husband dx 5/26/2010; Vidaza 28 day cycle.
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