Hi Dick,
You know you could always participate in a clinical trial - there are many for MDS patients living in Florida for example this:
http://clinicaltrials.gov/ct2/show/N...lorida&rank=11
The problem with trials are that if the dose is to large for your bone marrow it can be difficult to reduce it and then they sometimes don't allow enough support for example Neupogen or similar drugs if your WBCs decrease too much.
Kind regards
Birgitta-A
71 yo, dx MDS Interm-1 May 2006, transfusion dependent, Desferal and Exjade for iron overload, Neupogen for low WBCs, Thalidomide and Prednisone for bone marrow fibrosis