[Chirley]

Hi,

I went into daycare today for a transfusion and I saw my doctor.

I'm going to have another BMB in 2 weeks to see what's happening after missing 1 cycle of Vidaza. I'm also booked for another transfusion on the same day. This will make 2 BMBs and 4 transfusions in 4 weeks and I thought I was going to have a break when the Vidaza was cancelled.

Depending on the results of the BMB I am going to be offered 4 options.

1 Restart the Vidaza (unlikely from the sound of it)

2 Supportive care only (not a long term option)

3 VPA and Thalidomide (not MY preferred option)

4 SCT (scary and exciting at the same time)

Today I had confirmatory HLA tissue typing repeated and a discussion with my doc about how it looks as if that is where I'm headed.

In the mean time I'm feeling well with the fatigue improved off the Vidaza and the ataxia improving.

My counts today are

WCC 0.4
ANC 0.1
Platelets 120
Retics 4

I heard this on the TV the other day when someone was talking about the army but it is so true of this disease too --- Hurry up and wait.


Stay well.


Chirley