Thanks everyone for your information. My Doctor still hasn't got back to me with my results, so I am thinking no news, is good news. Thanks heaps.
But really hate this waiting.... and living my life on the edge all the time. I guess I still do worry a bit about one day bleeding to death! And wondering what that would be like. Sorry about being morbid. But I live so far from my specialist. I guess all that any of us can do is hope that the one who has led us here is going to lead us through to the end.
Thanks for listening.
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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