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Old Tue Sep 7, 2010, 04:00 PM
gipper gipper is offline
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Join Date: Sep 2010
Location: gainesville, GA
Posts: 10
Hi Marie,

There are two broad categories of MDS - primary (de novo) and secondary (secondary to prior chemo or radiation treatment). It is an undeniable fact that secondary MDS results in a poorer prognosis; however, treatments are available including bone marrow transplantation which could result in remission. Your eligibility for a transplant would depend on your overall health. Do discuss your prognosis with your doctor (they're often reluctant to do so, so you may have to prod a bit). I'm going to provide a couple links below, one fairly brief and the other very lengthy and detailed. You can find many more by googling "secondary MDS".

http://www.ehow.com/about_5184248_md...treatment.html

http://emedicine.medscape.com/article/207347-overview

I'm sure others who may have secondary MDS will chime in. There's always hope - try to keep a positive attitude. Many of us have lived a good number of years after getting the MDS dianosis.

Wishing you the best.
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gipper (AKA bill f), 76, ITP 11/00, MDS RA 1/05; myelodysplasia/myelofibrosis non-classifiable 4/09; revlimid ineffective; Dacogen positive; Nplate helpful, thalidomide better for low pltlt count; splenectomy 5/11; RAEB-2 9/11; Vidaza pending
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