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Hi Tom,
I too have RCMD, however my whites and platelets have been stable, they know that they are funky. I started out with no blasts but after 2 yrs I now have 3%. It was my hemoglobins that were greatly effected but they are now stable with meds. I was bad enough to be getting regular blood transfusions. This disease is so different for most of us even with the same classification.
I would suggest going to a Centre of Excellence for MDS, these places are at the fore front of our disease, even if it for a second opinion.
Good luck.
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