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My counts fell very slowly over about a 9 month period. My hematologist didn't know what to make of it after doing 2 BMB. She eventually got me in to see Dr. Young at the NIH. He didn't know at first either, but ultimately I was diagnosed with AA, but then they changed it to MDS. Sometimes it is a very slowly evolving disease; so if your dr. isn't too concerned at this point, just be hopeful that your counts stay where they are and take it from there.
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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