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How much is too much?
Hi,
I was just wondering if anyone else out there was averaging 2 units of blood a week?
I used to average 1 unit but then I had 3 cycles of Vidaza, missed 1 cycle of Vidaza and since then have been needing 2 units of blood a week. I assume that I'm not making any of my own RCCs any more and thought that now I must be destroying the donated ones as well. Does that sound right?
Is having that many blood transfusions a long term option? Does any one know if they do SCTs based on severe transfusion dependance rather than on blast counts?
Last blood counts were...
Hb 64
WCC 0.3
ANC 0.03
Lymphs 0.17
Plat 116
It seems that normal life doesn't exist any more and that this disease and it's treatment is taking control, I try to do other things but that is becoming more difficult.
Take care everyone.
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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