Hi Chirley,
Thank you for wishing me a good treatment result with Thalidomide for a long time! Now my HGB is decreasing 4 points/week compared to 20 points/week before Thalidomide
.
Perhaps you should remind your doctor about Exjade because Exjade can have adverse effects like low WBCs and high kreatinin so it can take time to find the best dose. I can't take more than 500mg/day though I should take 1250mg/day but my WBCs will not tolerate that dose.
Now they have found that it is important to try to decrease the ferritin level before a SCT. This abstract is from the EHA Conference June 2010:
http://www.eventure-online.com/event...ongressId=3446
Kind regards
Birgitta-A