[Chirley]

Hi,

Thanks for that, I'm definitely going to ask him about Exjade again.

Laura, I had 3 cycles of Vidaza and the only change in my blood counts were that my platelets dropped and started to not recover fully. As I'm paying the full cost of the Vidaza at $7,700 per cycle the doc decided to do a bone marrow after 3 cycles instead of the customary 6. The results showed that everything had gotten worse and the blasts had increased markedly so that I was now well and truly RAEB 1. My ringed sideroblasts had increased to 58%. He decided to cancel 1 cycle and repeat the BMB to see if there was any change negative or positive and then decide where to go from there. At my last appointment I got the impression that we may just proceed to SCT (although no donor found yet). I'm due to start the 5th cycle of Vidaza tomorrow but he has not made any appointments for me, so it's either cancelled again or it's going to be delayed. I get my latest BMB results on Thursday.

There is a lot of waiting with this disease isn't there?

Any one feeling the cold yet? We have had a wet spring so far but the temp has been good.

Bye


Chirley