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Old Sat Oct 9, 2010, 07:51 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi Susan,

I get IV Vidaza 200mgs 7 days with 21 off. When I was on 140mgs I had no side effects to speak of except a little constipation. Now that I'm on a higher dose I do get a little nausea, diarrhoea,fatigue, tender gums and sore muscles. I'm actually on a higher than recommended dose because my disease progressed on the lower dose. I'm keeping my fingers crossed that the increased dose is worth the side effects and am looking forward to my next BMB whenever that may be.

As far as I know we don't have access to Dacogen here.

Regards

Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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