My tacrolimus levels are up and my HGB drop has slowed a bit, only dropped 7 points last week and I felt a bit better. My counts yesterday were:
HGB 78, WBC 1.6, Neut 0.8, Platelets 91, Creatinine 89
tac 5.4
I am on a low dose of exjade, 500mg a day.
I have increased my minocycline to 100mg Mon, Wed & Fri. The rationale behind mino is this:
http://www.ncbi.nlm.nih.gov/pubmed/20173028 (mino is a PXR activator). I'm also taking septra, olmesartan, and am now up to 16mg of tacrolimus a day.
I am having some minor side effects from tacrolimus that I also had on cyclosporine - temperature sensitivity in fingers and toes. I can handle that.
Also having a less minor side effect return: pain in right hip. Not so thrilled about this one.
Transfusion tomorrow, hopefully my last!
Deb