Hi everyone. I havent been here for a while. Trying to put my MDS on the shelf so I can deal with other life issues. But it always comes back to haunt me. Last platelet count 26. The rest a bit under par but ok.
I've just taken part in the MDS Webinar from the AA&MDS organisation. It was really good to put some of my concerns and issues out there. It was really helpful. But I come away still feeling a bit overwhelmed by my disease. My platelets are still low and I'm trying to begin my new career in Animal Care. I keep hurting myself, to the point where I only feel comfortable to wear long pants because of my bruises etc.
And my hands are bruised a bit too. And it makes me FEEL ill just looking at them! Hope I am not coming across too negative but I am young-ish and trying to get on with my life. But I'm tired. And just want my treatment to get over and done with so I can make some kind of future plan.
The family around me still have the "she'll be right!" attitude which makes me feel like a hypochondriac. But I know that I'm not. I have this disease and they dont understand it. Because I can still get out of bed, and do the normal things that people do, like work. Even though, I am too tired often to get to do the fun things I'd like. Does that make sense?
I am sure I am not the only one with these issues. And I'm sorry I havent been around to support others here.
My life is a bit overwhelming in lots of ways... and if life is what you make it, its obviously ALL my own fault!
Thanks for letting me vent. I felt like I had to talk to someone. And I picked you.
Julie