Dear Julie,
I know exactly what you mean. The family don't realise what MDS is, and just think you are "a bit under the weather". My husband recently told me that he didn't realise I was sick last year, although I was seeing an oncologist and having blood transfusions! The only thing I can suggest is that you take someone from the family with you to see your oncologist, and show them the blood test results. Let them see the information on the medication you are taking, and all the literature available on MDS.
Also, listen to your body. If you just feel too tired, then don't do something, let the family help out. They keep finding new medications all the time, and there are bone marrow transplants for younger people, so just hang in. It might mean giving up on fun things if you want to keep doing your job, but unfortunately those of us with MDS have to learn to give things up.
If you have a support group, or a country wide association, they are a good source of support and information, and there is the U.S. association which has webinars and information which is very helpful.
It's a good job there is Marrowforums where you can vent! We all need somewhere. Best of luck,
Rosemary