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Well, I've had the repeat MRI (no results yet) and the lumbar puncture. My haem doc told me today that the CSF results showed an abnormality but that it was not diagnostic. My total protein and albumin levels were increased which could be anything from a tumour to hydrocephalus or chronic infection. He is leaving it to the neuro doc to investigate further but in the meantime the BMT will not go ahead until a definite diagnosis is made.
I wouldn't be surprised if it was some weird infection because my neuts have been sitting at 0.1 for some time now and I have considered myself very lucky to have avoided any nasty infections. I suppose luck has to run out sometime.
I have just come home from having my 4th dose of Vidaza for this cycle and I'm very tired (Hb is also low) so I think I'll have an afternoon nap.
Regards
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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