Quote:
Originally Posted by squirrellypoo
Ooh that's so soon, how exciting! So if you end on Black Friday, when do you start?
. . .
And I just wanted to say how nice it is to have nurse specialist on email - both my pre- and post-transplant nurses were always on email and it makes it just SO convenient to pop over questions as you think of them.
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Hey Melissa,
Thanks for the info on your experience with Campath. I am hoping not to have itchy rash, but, if it's over quickly, I'm sure I can deal with it. I've been told to expect to feel like I have a seriously bad case of the flu for a couple or three days -- including chills, the shakes, etc.
It's a 12-day stay at NIH, 11/15-26, if all goes well.
I really wish my local hematologist was more email friendly! I wind up faxing his triage nurse (who is outstanding), she calls him and then calls me. That's nuts! I read an article on the Cleveland Clinic that talked about their new system that has docs on email; your labs accessible via the web, etc. I would love that. It makes me nuts to have to pry my labs and other records out of the bureaucrats in the medical records department.
Take care!
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at
www.greghankins.com