[cheri]

Thanks for your replies ladies..Birgitta, I see that you are quite informed and involved...Wow--this sure is a full time job...you must feel like you are still in practice! I live alone and in a pretty remote place...a sister nearby and a friend, but kids are far and I'm divorced....
Susan, seems we're in the same canoe! Keep in touch--it's great to have someone to compare Vidaza notes with, since we are pretty much on the same schedule.. Other than needing Zofran (anti Nausea) , I handle it pretty well....

I spent Tues nite last week in the hosp as my platelets were 2k!
Recieved 2 unit platelets; up to 92K post...temp fluctuated all week hig 98's' 99's and a couple 100+...no other symptoms; felt fine. Place on Cipro/ Vanco mycin and left with Rx for Levaquin.

No fever at all Saturday and Sunday...

Today
Now on platelets-- Mon and Thursday regimen.
Had CBC this am: WBC 1.1; Platelets; 12, RBC 8.9--Temp 99.3
Had Post platelet CBC 3 hours later....RBC 7.9....?
How is that possible to drop that much that fast? I would have expected a low reading this morning, based on the breathing issue over the weekend that has since subsided. I'm confused! Now they want me to have 2 units again tomorrow, just had some last week...concerned about iron overload...how is that diagnosed? Or is it just rote after X units? (Some say 8, some 20, some test first...)

Overall, I feel normal, look good. My blood oxygen is always 100%!

Any insight or info is appreciated--I know everyone is different, and I tend towards the a-typical....trying and fighting to be one of the exceptions!
Take care and have a great night, and thanks again.....
Cheri