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Hi Cindy,
How disappointed and shocked you both must be! Don't give up hope though. I was able to find an unrelated fully matched donor in less than six months. Also, my transplant doctor said that with the advances in treating GvHD that it is no longer important to have a perfect match or even a very close match. If I hadn't been able to find an unrelated donor, he was pepared to proceed with my half-sister who is 70 years old as the donor for a haplo transplant, and she has not even been tested. I forget which facility you're working with but you should ask your doctor about this. If you're interested in additional opinions regarding the matching issue, this is a primary focus of research at Johns Hopkins in Baltimore; I can give you contact information for my doctor who is also the transplant department head. Send me a PM if you're interested.
Hugs, Karen
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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