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Greg
Hi - I think the pager or cell phone idea is genus!!! Is there a way to suggest it there? Really it makes all the sense. I am glad you are doing so well. How long will you be there? I read alittle on the MDS forum about your treatment and Dr Sloand. They are hoping it will be "the" treatment. I encouraged that there seems to be so much research going on for MDS. So many have never heard of our problem, and really we dont really look sick except for the occassional having to stop and catch a breath or the vertigo that goes with it. Keep the info coming - it really is enlightening. Take care 
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Susan Patient, 58, MDS, UPDATED 9/13
Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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