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Oh yeah, I forgot you had some odd stuff going on. ATG is not a total reboot the immune system if that helps. That was part of our discussion with Dr. Brodsky when John was trying to decide his treatment. HiCY pretty much wipes it all out which results in a very low relapse rate and there's no need for additional immunosuppressant drugs after the initial treatment. Nothing left to suppress.
I've got my fingers crossed for you on the LDN. If it works, I think it will take a while before you see it showing up in your CBC.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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