[Greg H]

Originally Posted by cathybee1

The hematologists with whom we've discussed Bruce's low copper levels weren't too concerned about it being in the 60's because it "wasn't that low." The family doc believes that it is still WAY low -- that to really help in getting the bone marrow going, it needs to be at the middle, not the bottom, of the range. So he upped Bruce's copper supplementation.

Catherine,

Thanks much for this update. I had one copper test at NIH that the doc told me was "normal," though I haven't yet see those labs, so I don't know what the number was. Ironically, that was after they had taken me off copper for a week or so.

But I left with orders to continue my 6 mg/day of chelated copper. The NIH docs were pretty skeptical of the advice I got from Wake Forest to add some zinc to the mix, giving more weight to the evidence that zinc inhibits copper absorption.

I should ask my local doc to test copper again -- maybe after the first of the year.

I like your local doc's theory: Just because you copper level is barely normal doesn't mean it's optimal. How much copper is Bruce taking now? Is he doing zinc as well?

Thanks for that report.

Hope you and Bruce are having a great holiday season!

Greg