View Single Post
  #102  
Old Fri Dec 17, 2010, 08:09 PM
Chirley Chirley is offline
Member
 
Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi,

I have also got low copper. When I was first tested my level was 0.5 normal range being 13 to 25. I have been giving myself Copper Histidine 3mg/ml injections into my stomach twice a day for the last 5 weeks and the level has just returned to normal at 13.3.

My CBC has returned to normal for the first time in 7 years (except for Lymphs which are still below 0.5) and I have not had to have a transfusion for 4 weeks. Unfortunately it looks as if I have a metabolic disorder which causes copper/iron interaction problems. As a result I excrete large amounts of copper in my urine. The Professor of metabolic medicine that I see thinks that oral copper will not be an option for me although we are going to do a trial of oral Copper Sulfate solution at 2mls 3 times a day with a dosage of 1mg/ml. The needles are a bit painful and leave red sore patches for a few days afterwards and I'm keeping my fingers crossed that the oral copper will work. They are also a bit expensive at $120 a week which I have to pay for myself. They're not government subsidised and my health insurance won't help either. I'm the only adult in Australia on these needles and that's why they can't be imported from the USA.
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
Reply With Quote