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Sorry, I was interrupted before I was finished.
I'm going to have another BMB in a few weeks time to see if the MDS has gone. It's complicated by having had 5 cycles of Vidaza and we don't know if I do really have MDS which is in remission due to the Vidaza or whether all the problems were caused by the copper deficiency.
Sorry to have hijacked your thread but the topic seemed appropriate.
All the best.
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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