Quote:
Originally Posted by cme01
Hi,
I have also got low copper. When I was first tested my level was 0.5 normal range being 13 to 25. I have been giving myself Copper Histidine 3mg/ml injections into my stomach twice a day for the last 5 weeks and the level has just returned to normal at 13.3. My CBC has returned to normal for the first time in 7 years (except for Lymphs which are still below 0.5) and I have not had to have a transfusion for 4 weeks. Unfortunately it looks as if I have a metabolic disorder which causes copper/iron interaction problems. As a result I excrete large amounts of copper in my urine. The Professor of metabolic medicine that I see thinks that oral copper will not be an option for me although we are going to do a trial of oral Copper Sulfate solution at 2mls 3 times a day with a dosage of 1mg/ml.
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Hey Chirley!
Thanks for letting us know about this. I've never run across anything about this particular metabolic disorder. Do you know what it's called. Most of what I've read on copper deficiency mentions only gastric surgery as a cause. So I'd be interested in knowing more about this alternative explanation.
I hope the copper sulfate works for you -- the shots sound both painful and expensive. Copper deficiency doesn't seem to be something with which the physicians I've encountered are very familiar.
Take Care!
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at
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