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Mary/Greg
Quote:
Originally Posted by Greg H
Susan,
There is Revlimid, but that's mostly good for folks with deletion 5q. I imagine if you had del5q, you would already have had Revlimid.
There's a new drug that's in clinical trials partially sponsored by the Leukemia and Lymphoma Society. It's called ON 01910.Na or trade name "Estybon. " NIH is one of the trial sites. I understand that it has shown promise in folks with Trisomy 8, as well as other folks. Take a look at this thread for some information on results presented at the recent ASH conference. It might be worth checking out the Clinical Trials, particularly if you still have contacts at NIH.
Have you decided against transplant?
Take care!
Greg |
Thank you both for replying to me w/suggestions. I do not have 5q so the one is out. The doctor said he was going to meet w/his partners and see what would be an option. We did touch the stem cell transplant but he did not seem to be going for that option. I am meeting w/him again on Jan 12 to see what is available. I will read about the Esybon. Thank you both.
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Susan Patient, 58, MDS, UPDATED 9/13
Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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