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Chirley, what a roller coaster ride you've had.
Bruce had metabolic testing yesterday, we're hoping to find out more why he hasn't been responding to the oral copper.
I hope the doctors know more than we do about this. There is so little information available about it.
Your posts have been very helpful. I can't tell you how much I appreciate them. I hope you are feeling a bit better.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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