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It's SOOO good to hear from you, Chirley. Am I right that your RBC is holding despite the drop in copper. That sounds like good news -- but bad news about the new parasthenia. Sent you a private message about Bruce's copper. The bottom line is he is not gaining much ground, and we're waiting to hear back from our family doctor, who so far is the only one willing to take this on.
Susan, I am so sorry for what you have been through. I can relate a tiny bit, having had a over year long personal fight about a workman's comp claim. The fighting and dealing with bureaucracy was totally beyond me at times, and I wasn't dealing with a bone marrow disease.
To both of you -- Bruce took a break from doctoring last fall. I was not for it at the time, but it turned out to be a very wise decision. The patient knows best what they need and when they need it.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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