Watch and wait ends, Vidaza begins
Hello Chirley
I have been wondering how you are progressing. I did not remember that you were now Tx free. That makes not having regular tests reasonable but you should not let yourself become too anaemic and cause damage to your organs. I guess your body will tell you. I admire your will power. It is a fine line between not worrying about the results and panic. Have you thought of approaching the counsellors at the Leukaemia Foundation? I am sure they have many patients with complex conditions such as yours. Just talking to someone impartial often helps.
It is positive that your therapy is progressing well.
I have just had a lovely visit from my son from Wales who helped me get organised so that I can base myself in the city. My project now is to get some structure into my new life and unpack!
My best wishes to you and good luck with your progress.
Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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